Rogers SN, El-Sheikha J, Lowe D. The development of a Patients Concerns Inventory (PCI) to help reveal patients concerns in the head and neck clinic.Oral Oncol. 2009; 45(7): 555-561. DOI: 10.1016/j.oraloncology.2008.09.004 (IF: 2.695)
Rogers SN. Clifford N, Lowe D. Patient and carer unmet needs: a Survey of the British Association of Head and Neck Oncology Nurses. BJOMS 2011; 49: 343-348. DOI: 10.1016/j.bjoms.2010.06.017 (IF: 1.95)
Ghazali N and Rogers SN. The Head and Neck Cancer Patient Concerns Inventory (PCI): A Practical Holistic Assessment Tool in Outpatient Setting. PRO Newsletter #45 (Spring 2011)
Rogers SN. How developments in Maxillofacial Surgery have contributed to improved quality of life for patients. ENT & Audiology News 2011; 20: 46-48.
Ghazali N, Rogers SN. Identifying Undisclosed Concerns and needs using the Patient Concerns Inventory (PCI). Oncology News 2012; 6: 195-198.
Ghazali N, Roe B, Lowe D, Rogers SN. Uncovering Patient Agendas in Routine Head and Neck Oncology Follow up Clinics: An Exploratory Study. British Journal of Oral & Maxillofacial Surgery 2012. In press. http://dx.doi.org/10.1016/j.bjoms.2012.08.002 (IF, 1.95)
Ghazali N, Lowe D, Rogers SN. Enhanced patient reported outcome measurement suitable for head and neck cancer follow-up clinics. Head & Neck Oncology 2012, 4:32 (IF, 3.08)
Scott B, Ghazali N, Lowe D, Rogers SN. The Patients Concerns Inventory in Head and Neck Cancer: comparison between self-completed paper and touch screen patient self-completion versions in the clinic setting European Journal of cancer Nursing (E-pub ahead of print: 20 May 2013) DOI: 10.1016/j.ejon.2013.05.002 (IF: 1.685)
Ghazali N, Roe B, Lowe D, Rogers SN. Emergent Trends of Perceived Needs and Concerns in Long-term Survivors of Head and Neck Cancer Using the Patients Concerns Inventory. Submitted to Journal of Cancer Research & Therapy.
Impact on clinic
Ghazali N, Kanatas A, Langley DJ, Scott B, Lowe D, Rogers SN. Treatment referral before and after the introduction of the Liverpool Patients Concerns Inventory (PCI) into routine head and neck oncology outpatient clinics. Supportive Care in Cancer 2011; 19(11):1879-86. DOI: 10.1007/s00520-011-1222-9 (IF, 2.597)
Ghazali N, Kanatas A, Bekiroglu F, Scott B, Lowe D, Rogers SN. The Patient Concerns Inventory: A Tool to Uncover Unmet Needs in a Cancer Outpatient Clinic Bulletin of The Royal College of Surgeons of England 2013; 95(3): 1-6 (IF, 1.093)
Ghazali N, Lowe D, Rogers SN. Introduction of the PCI H&N into a consultants clinic: a before and after pilot study (Annals RCS Eng)
Brandes et al 2015 1 showed that the most influential barriers to expressing concerns during cancer consultations were related to providers' behaviour (e.g., providers do not explicitly invite patients to express concerns) and the environment where the consultation takes place (e.g., perceived lack of time).
It is our belief is that the Patient Concerns Inventory contributes to a strategy that helps overcome barriers to patients expressing concerns, and is appropriate to routine follow-up consultations.
1. Brandes K, Linn AJ, Smit EG, van Weert JC. Patients' reports of barriers to expressing concerns during cancer consultations. Patient Educ Couns. 2015 Mar;98(3):317-22. doi: 10.1016/j.pec.2014.11.021. Epub 2014 Dec 2.
Kanatas A, Ghazali N, Lowe D, Rogers SN. The identification of mood and anxiety concerns using the patients concerns inventory following head and neck cancer. Int J Oral Maxillofac Surg. 2012 April; 41 (4): 429-436. DOI: 10.1016/j.ijom.2011.12.021 (IF: 1.521)
Flexen J, Ghazali N, Lowe D, Rogers SN. Identifying appearance-related concerns in routine follow-up clinics following treatment for oral and oropharyngeal cancer. Br J Oral Maxillofac Surg. 2012; 50: 314-320. DOI: 10.1016/j.bjoms.2011.05.005
Rogers SN, Cleator AJ, D Lowe D, N Ghazali N. Identifying Pain-related Concerns in Routine Follow-up Clinics Following Treatment for Oral and Oropharyngeal Cancer. World J Clin Oncol. 2012; 3(8): 116-125. DOI: 10.5306/wjco.v3.i8.116.
Ghazali N, Kanatas A, Scott B, Lowe D, Zuydam A, Rogers SN Use of the Patient Concerns Inventory to identify speech and swallowing concerns following treatment for oral and oropharyngeal cancer. The Journal of Laryngology and Otology 126 (8), pp800-808. DOI: 10.1017/S0022215112001107 (IF: 0.681)
Zuydam AC, Ghazali N, Lowe D, Skelly R, Rogers SN. Evaluation of the limitations of using the University of Washington Quality of Life swallowing domain alone to screen patients in the routine clinical setting British Journal of Oral & Maxillofacial Surgery 2012. In press.http://dx.doi.org/10.1016/j.bjoms.2012.05.009 (IF, 1.95)
Kanatas A, Ghazali N, Lowe D, Udberg M, Heseltine J, O'Mahony E, Rogers SN.Issues patients would like to discuss at their review consultation: variation by early and late stage oral, oropharyngeal and laryngeal subsites. Eur Arch Otorhinolaryngol. 2013 Mar; 270(3): 1067-74. DOI: 10.1007/s00405-012-2092-6. Epub 2012 Jun 29. (IF: 1.458)
Rogers SN, Hazeldine P, Colins S, O’Brien K, Roe B, Lowe D. Identification of intimacy issues raised in head and neck cancer review clinics (under submission)
Fear of recurrence
Rogers SN, Scott B, Lowe D, Ozakinci G, Humphris GM. Fear of recurrence following head and neck cancer in the outpatient clinic. Eur Arch Otorhinolaryngol. 2010 Dec;267(12):1943-9. DOI: 10.1007/s00405-010-1307-y (IF: 1.458)
Ghazali N, Cadwallader E, Lowe D, Humphris G, Ozakinci G, Rogers SN. Fear of recurrence among head and neck cancer survivors: longitudinal trends. Psychooncology. 2013 Apr; 22 (4): 807-813 DOI: 10.1002/pon.3069. (IF: 3.506)
Hatta J. Doss J, Rogers SN. The feasibility of using patients' concerns inventory (PCI) in managing malaysian oral cancer patients. International Journal of Oral & Maxillofacial Surgery. IJOMS-D-12-00976R1 (in press) (IF: 1.521)
Moots RJ, Rogers SN. Rheumatology today and in the future. Rheumatology (Oxford). 2011 Dec;50(12):2149-50. DOI: 10.1093/rheumatology/ker386.
Kanatas A, Velikova G, Roe B, Horgan K, Ghazali N, Shaw RJ, Rogers SN. Patient Reported Outcomes in Breast Oncology: A Review of Validated Outcome Instruments. Tumori 2012 Nov; 98 (6) 678-688. DOI: 10.1700/1217.13489. (IF: 0.922)